The last couple weeks have been pretty tough for me. Been through lots of testing..
(That's why the blog has been on hold, sorry)
Pain has been high and been worst then usual. Like usual, some days are better than others.
My mom and dad have been helping through these last couple weeks, so thankful!!
On the doctors side--
Still no word of what is wrong with me. Doctors are dumbfounded. My neurologist, thought maybe my problems could be from increased CSF pressure, after I had a night in the ER from intense pain. So we went ahead and did a spinal tap. The test came back all good. We went back to my neurosurgeon who did my surgery and he said everything looked good. He said it's most likely something in the brain, and will be a complicated case.
My neurologist mentioned in my first appointment I could have MS (they found some spots on my MRI weren't alarming but unspecified), but it be very rare. We used the fluid (from spinal tap) and blood, a vision evoked test and tested me for possible MS.
We got the call during the week that I did not have MS, which was a relief, but was also sad. We now have no lead.. No doctor knows what's wrong with me.
All I can say, the brain is one mystery.
Omg...schatz. I'm so sorry you are going through all of this :-( I wish there was something we could do to figure this out for you :-( this year was suppose to be better...damn...my thoughts are always with you and know that I love you much xoxoxoxo
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