I was just given very bad news, news I was hoping to change my health. I was denied to the Mayoclinic. They didn't find me a good fit for their program, they wouldn't be any help to me. It really broke my parents heart, and mine. We have been planning for months to go there, hoping they would find a way to help me. We've been so frustrated, no one can help us.
At the moment I was told, I felt like it was the end of world. But you know, for the last year I've been telling myself, everything happens for a reason. Even though, I wish I could get better yesterday. Sometimes you just gotta keep searching and the day will come.
The mayoclinic was a disappointment to us, but we will find a doctor.
The mayoclinic was a disappointment to us, but we will find a doctor.
Hi Sydney, I am an admin for a support group for chiari. I think I can help answer some questions for you, if you would like to email me at lesliealford10 @yahoo.com . our support group is for adults but there are many chiari specialists out there that can help. As far as your vision, a neurooptimologist is who you would need to see if it has to do with chiari. Please feel free to email me or have your parents contact me. The mayo clinic does not have a reputation for specializing in chiari but there are doctors that do, don't give up hope. I can help lead you in the right direction. I just need to know more about your diagnosis and connecting conditions yo tell you which specialist is best.
ReplyDeleteAwww sweetie...I'm sorry to hear your recent bad news:-( this is so frustrating... I wish I could do something to help...if there's anything you can think of let me know...mom and dad too...but the annonymous comment above sounds promising...
ReplyDeleteThat's right sweet girl... God's got bigger, better plans for you! Keep dreaming big, believing big and never give up hope <3 xo
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