Sunday, May 3, 2015

Photography Hobby

Most of the people who know me, know I've always loved taking pictures. It's always been a little hobby of mine, and as I got older, I even grew to love it more!

For my graduation present, I got a fancy camera from my Oma & Opa. Which I cherish and love! (Thank you Oma & Opa for my awesome camera) 

Even though some days I can barley get out of bed, I sometimes make a mission to go outside and take pictures. Most of the time it's my pup, Isabelle.

I love taking pictures of people, plants, and just about anything.
(If you cannot view slideshow click this link http://s1375.photobucket.com/)

You can also find and follow me on http://www.pixoto.com/sydneyrohmann for more pictures. 

Photography is one of things that I love to do, and I will not let my illness take it away.
I also have a passion in making videos, but haven't been able to make many but make them when I can!


(If you cannot view video click this link https://www.youtube.com/embed/Hld0EsdUGIE)

If you wanna check out my videos, http://youtube.com/sydneyrohmann.


Don't let anything stop you from doing what you love. You might have to do it slower than others but you will get there. There is no rush, you've got all your life! 

Friday, May 1, 2015

Unexpected Surgery

Funny story, on Thursday April 16th, I began to have severe pain on my right side below my rib, just over night. It was a pain that I have never experienced before and with all my other pain, it put me over the edge.
My mom then took me to the Urgent care, which I thought I had gotten a severe cold from my dad because of my low immune system.

Turned out to be my Gallbladder (didn't think of that happening), and then was transferred to Froedtert Hospital ER to be admitted to get my gallbladder removed. The surgical team was so surprised on how quickly I had produced stones, given I had ultrasounds in November of 2014, which showed no sign of gallstones. During this process, I was in such severe pain, I was given pain meds and then the surgical team came to talk over the whole surgery and there I signed my life away. It was considered "Emergency Gallbladder Surgery" because usually it is done out patient and not done by a trauma surgeon or the way I had it done. After that, I was admitted into the hospital and to my room to have surgery the next day on Friday.


Friday came and we waited all day for the surgery to happen, around 12 I was taken to the pre-op room. At that point I was in such pain, I couldn't explain how bad it was, they had to remove my last IV cause it blew. My IV's were blowing out in a hour, which is so normal with me, so I didn't receive pain meds for over 2 hours.
Then the team came in for the surgery, and had to put a new IV in. The anesthesiologist took one look at my arm and stormed out of the room. He was livid, my veins where shot. It took 2 more anesthesiologist and over 2 hours to find a vein, which postponed my surgery. (Which pokes don't bother me anymore since I have them all the time) 
They finally got a vein, and I was then was quickly transferred to OR for surgery. Usually I only have 1 anesthesiologist, but because of my POTs and it's considered a heart problem they have to have extra people on hand.

Then most of you know what happens after, I woke up in recovery and then was taken back to my room. Surgery went great! One less organ! I then spent the night.
The next couple days were rough, most people recover more easily but with all my other health issues it was tough. They kept me Saturday and I was sent home Sunday.

So far, the surgery has really messed up my whole body. But it's been almost 2 weeks since surgery and finally getting back to my normal self.
My family was hoping maybe my gallbladder was causing some of my stomach problems, but unfortunately, I have seen no improvement. Which is disappointing but I was not expecting any miracles. 


I wanted to not sugar coat things, like I usually do. These past couple of months have been very crazy. With the support of family and friends, I will always get through it and I want to thank everyone who has prayed and been there for me! :)

Just another day, getting things done and trying to get back to recovery for my health.



To learn more about my other conditions: http://sydneysquest.blogspot.com/p/learn-more.html

Friday, April 3, 2015

When Things Turn South

Recently things have really turned south with my health. I hate admitted that it is, but when you get told, “wow you like crap, why aren’t you in the hospital?” No I won’t die from it but it sure does feel like it. 
When you start to have hope that it will be somewhat fixed and then a bomb is dropped. Your new problem is just like the old problem, not easily fixed. Now you got a couple illnesses that are complicated, feels like like I’m in a bad relationship with my body. I’ve been sick for 3 years, almost 4. I am so used of things never being easy or ever going my way. When you finally get a little break and then your bodies like “Nope its not gonna be that easy”. 
Sometimes the emotional part that is the hardest, trying to accept that your really sick. Your life is not gonna be that simple. You start to look at your friends that don’t have a illness and you start to wonder if your life is ever gonna be “illness free”.
Sometimes it feels like its one thing after a another, docs think you are crazy, and you start to think they are right. Fix 1 problem and 2 more appear, like why does that happen? 

Like I said, your in a bad relationship with your body. Relationships are never easy.



Wednesday, March 11, 2015

It's 2015!

Hello Everyone!

It's been a while since I have written a blog post. I am truly sorry for that, my illness has really taken over my life. After the last post, I had taken a turn for the worst. I never like admitting these things, but sometimes it's good to come to grips with things.
After being admitted into the hospital, I got a little better but was not to my old self (before the problem). I had always had dizziness but it had gotten very bad. I would stand up and almost pass out. Thank goodness, we had a doctor to go to even though it was a genetics doctor, he was really the light at the end of the tunnel. He was not happy on how sick I was, he referred me to a GI doctor at Children's.
That GI doctor ordered a TILT test, before even seeing me. I had gone to do the tilt test and it was very rough. At the end of the test, I had a seizure. It was the most scariest thing, I had in my life. It was confirmed that I had a Autonomic Problem. I was then diagnosed with POTs, a form a dysautonomia. POTS is pretty much when I stand up my blood pressure drops suddenly and my heart rate goes up, causing me to black out or faint. It's a heart condition, most likely caused from my Chiari. These doctors wanted to do more test, including checking my hearing, MRI, stomach test, and many more. They told me it's not gonna be a easy fix, and it will take time to get better!
Yes, I've been very ill but I'm dealing with it! I've got the support of my friends and family!

A week ago, I went to my ear doctor to get my hearing test and it was confirmed that I was deaf in my left ear. He had said, if your hearing comes back it would be a miracle! (There can always be miracles!) He said I would need new hearings aids to help me hear.

I am so not the one, to "ask" for money. But with medicial bills pilling up, it can really get tough!
Please feel free to share my --GOFUNDME-- page!
http://www.gofundme.com/SydneysQuest



Sometimes life gives you the hardest challenges. I know I can defeat this illness!
IF anyone reading this is going through a rough time, know that things will get better! And if they don't, then you will deal with it then, when that happens!
Always stay positive! Hope and Positivity can change everything!